Tymes Magazine

Vision
for young people, families and professionals

Shirley Conran

I am proud to be associated with The Young ME Sufferers Trust as a Patron. The Trust's magazines have helped me considerably; I really do read every issue from cover to cover. I think that the interviews are extremely good, and quite different from one another.

Shirley Conran OBE, best-selling author

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Tymes Tidings 2013

Tymes Tidings 2013

  • Young Hearts Awards Announcing the professionals who received one
  • ME - The New Plague 2 About Jane Colby's new book
  • House of Lords Countess of Mar's speech describes Tymes Trust's work
  • Tymes Trust Team Putting faces to names
  • Russell's Roundup People who've been involved with the Trust this year
  • Seb's Spread Art Gallery and Photographs
  • Gregory's Christmas Print out and colour
ME Briefing 2013 - Not NICE

ME Briefing 2013 - Not NICE

  • Hospitals and paediatricians Insisting on school attendance 'misinterprets' NICE Guideline
  • Jane Colby A Briefing on our Child Protection Work
  • NICE The Good The Bad and the Ugly (from 2007)
  • Twitter Q&A #AskJCC on Young Hearts Day 29 November 2013
ME Awareness 2013-2014

ME Awareness 2013-2014

  • Unsuitable Regimes Families have the right to decline
  • Research What causes ME?
  • ME v CFS Byron Hyde and Bruce Carruthers
  • Child Protection Implications Severity or chronicity trigger investigations
  • Fatigue Clinics are not ME Clinics The ‘fatigue’ model
  • Managing Education and School Webinar for Local Authorities, schools, parents
  • Seb's Awareness Spread and Gregory's Poohsticks
Tymes Tidings 2012

Tymes Tidings 2012

  • International Consensus Primer for Medical Practitioners on ME Recommends Tymes Trust
  • Scottish Cross Party Group folds By Tymes Trust Representative Scotland
  • Climbing Helvellyn And other fundraising feats
  • Russell's Tour Your photos and news
  • Seb's Spread Young Hearts winners and Art Gallery
  • Gregory's Christmas Print out and colour
Vision 2012-2

Mini-Vision (2012-2)

  • Post-a-Poster Campaign Don't Make Me Fail At School
  • Exploding ME Myths With Dr Elizabeth Dowsett
  • House of Lords Education Awards With Nisai Virtual Academy
  • Art and Poetry Winners' work published
  • Things 4 U 2 Do Colour Gregory's Sweetshop
  • Young Hearts New poems wanted for publication
Russell's Report 2012-1 Russell's Report 2012-1

Russell's Report (2012-1)

  • News and photographic competition
  • Home education success

Trust News

  • Do treatments for ME/CFS work?
  • Cruelty to children with ME
Tymes Tidings 2011

Tymes Tidings 2011

  • New Special Educational Needs Green Paper 'Support and Aspiration'
  • Hannah Titania A true fairytale
  • Russell's Roundup Members' news
  • Lady Elizabeth Anson (cousin to the Queen) and Seb!
  • Russian dancers children's colouring Prizes waiting!
Russell's Report 2011-1 Trust News

Russell's Report (2011-1)

  • Members' news and competition

Trust News

  • Press Report : Tymes Trust lecture at Carlisle
  • Our GP Project praised by UK Government
Vision 2011-1

Mini-Vision (2011-1)

  • Post-a-Poster Campaign Stop Damaging Exercise Therapy for Children with ME
  • 2011 : My Year of the Net Does your inbox receive Jane's personal email Alerts?
  • Things 4 U 2 Do Colour Susie's Springtime ducklings and butterfly!
Vision 2010-3 The Brief 2010-3

Vision (2010-3)

  • Vision The Trust takes a stand against injustice
  • Dr Nigel Speight on Treatment Interview by Jane Colby
  • Colour Susie's Cosy Fireside Claim your Magic Pen set!
  • Poetry Missing Rhymes Win a personalised baby animals 2011 calendar!!
  • Our Biomedical Research Professor Jill Belch and Jane Colby on BBC Radio
  • NICE Guidance Our evidence to NICE shows serious need for review
  • Join our Exams Letter Campaign Help students with ME taking exams
  • Seb's Clever Colouring Is yours published here?
  • Young Officers Stunning pictures from our Young Photographers
  • Launching our Young Hearts Award Who will you nominate?

The Brief Questionnaire (2010-3)

  • Are schools failing children with ME? Please send us your experience
Vision 2010-2 Things 4 U 2 Do

Mini-Vision (2010-2) Photographic Special

  • The Queen’s Award for Voluntary Service: the MBE for voluntary groups Our work recognised
  • Our new biomedical research Persistent infection shown in children with ME
  • Our Learning Commitment Awards Presented at the House of Lords
  • We celebrate our 21st birthday Happy Birthday to us, etc!

Things 4 U 2 Do

  • Colour our Country Stuff For a prize of course!
  • Knock Knock! Find Dr Who’s missing rhymes
  • Help students with ME Send our exams letter to your school
  • Give a Young Hearts Honour to someone who’s helped you
  • Become a Young Officer of the Trust
Vision 2010-1 Revisiting the 2002 Department of Health Report on CFS/ME

Mini-Vision (2010-1)

  • Our Research : ME is Physical
  • Learning Commitment Awards
  • Revisiting the DOH 2002 Report

Revisiting the 2002 Department of Health Report on CFS/ME

Excerpts from the Children's Chapter of the Chief Medical Officer's Working Group Report, with sections on Education and Child Protection. We hope this information will assist families, doctors and teachers.

Vision 2009-3 The Brief 2009-3

Vision (2009-3)

  • Vision : The Project Philanthropy, Efficiency, Independence
  • House of Lords 2010 Your display : ‘How ME Affects Me’
  • Review of 2009 Judicial Review of NICE, RSM Conference, ME and Viruses
  • Burn Gorman’s Christmas Message Strength, determination and peace
  • Things 4 U 2 Do Story challenge, find the missing rhymes, colouring
  • Seb’s Amazing Art Archive What Makes You Smile?
  • Young Officers Advocate, Artist UK, Competition Champ, Artist Overseas
  • 21st Anniversary Presentation Hosted by Colchester ME Self Help Group
  • Mr Harley’s Misbehaving Menagerie Could you give one a loving home?

The Brief (2009-3)

  • Jane Colby’s complete Witness Statement
    for the Judicial Review of the NICE Guideline
Vision 2009-2 Young Hearts Day

Mini-Vision (2009-2)

  • Trust’s Young Advocate at Royal Society of Medicine
  • Fight between Colby and BMJ published in US College Textbook
  • Trust’s Young Artist sketches Naughty Seb

Young Hearts Day

Your contributions displayed at the House of Lords in 2010. Download, print, complete, post to us.

Vision 2009-1 Susie's Magic River

Mini-Vision (2009-1)

  • ME Census Backed by Medics
  • Trust on the BBC Politics Show
  • Free Virtual Education and competitions

Susie's Magic River

Welcome to Susie's Colouring Competition. Download, print, colour, send to us. You can also try for a Shirley Conran Writing Award. Read on...

The Brief 2009-1

The Brief (2009-1)

  • NICE Guideline Judicial Review The aftermath
  • Enteroviruses Persist in Muscles
  • Focus on Special Problems of Children with ME/CFS
  • Enterovirus Project - Next Steps
Vision 2008-2 The Brief 2008-2

Vision (2008-2)

  • Vision : Project Update
  • Join our Alerts Club Free monthly news from the Trust
  • Young Hearts Day 2008 Students present Young Hearts poems on YouTube
  • Enterovirus Project Trust works with virologist John Chia
  • Your Benefits What are you entitled to?
  • It's the Law, Stupid! When children's rights are ignored
  • Nasim Marie Jafry Author of The State of Me
  • Seb's Grand Art Exhibition First class festivities
  • Mr Harley's Pup-Keys More useful than the average bear?

The Brief (2008-2)

  • Child Protection Issues Presentation to All-Party Parliamentary Group
  • Oxygen Deprivation During Exercise Confirmed
  • Focus on Explain Your Abilities
  • ME? It's Kids' Stuff Virus spreads in schools
Vision 2008-1
The Brief 2008-1

Vision (2008-1)

  • Vision : Project Update
  • At Home With The Trust "Attend" our virtual Open Day
  • Trust Alerts to Your Inbox Sign up now
  • Your Question What can we expect from standard CBT/GET?
  • Our Needs Our Lives Advising your clinic
  • Virtual Education Update Advising the government
  • Alan the Alien Talking sense as usual
  • The Good People More magic to colour from Susie
  • Fun Raising! Our thanks to you all

The Brief (2008-1)

  • Activity Programmes Helpful or harmful?
  • Dutch Study Finds Cognitive Behaviour Therapy Overrated
  • Focus on Diet in ME - is it such a big deal?
  • The Lightning Process Miracle cure?
Mini-Vision 2007-3
The Human Factor

Mini-Vision (2007-3)

  • Princess Helena Becomes Patron
  • Hope of a Test and a Cure
  • Big Apple Bears and Seasonal Competitions

The Human Factor - A Preview of The Colby Report 2008

  • ME - The New Plague Updated passages
  • John Chia MD Interview Why did no-one believe ME was a persistent viral infection?
  • Register Get information and/or be consulted for the Report
Vision 2007-2
The Brief 2007-2

Vision (2007-2)

  • Vision : Project Update
  • House of Lords Trust and Friends celebrate virtual education success
  • NICE Report The Good, the Bad and the Ugly
  • The Meeting Tell us the tale of Susie's latest artwork
  • New Research Enterovirus link confirmed
  • Brentwood Cathedral Stewart Henderson's special poem for ME Awareness Day
  • Seb Meets Lady E Eight small steps for a spider...
  • Your Question Is ME now classified as CFS?
  • Padraig Harrington Open champion wishes you the luck of the Irish!

The Brief (2007-2)

  • CFS/ME Confusion Activity programmes could be harmful
  • Independence of Charities Threatened
  • Focus on ME/CFS in UK Schools
  • Pervasive Refusal Syndrome - What Is It?
Vision 2007-1
The Brief 2007-1

Vision (2007-1)

  • Vision : Project Update
  • In The Spotlight "Schools swept by ME plague"
  • Irish ME Group Partner Group reviews College of Psychiatrists' CFS publication
  • Susie's Springtime More amazing artwork for you to colour
  • Why CFS is not ME The Trust's submission to NICE
  • Byron Hyde MD Author of the new Nightingale ME Definition
  • Letters of Commendation Would you like us to recognise your best teacher?
  • Super Spider at Large Again More heroic holidaying
  • ME Awareness Day Music and poetry at Brentwood Cathedral

The Brief (2007-1)

  • SEN or Not? Two parallel systems for modified education
  • Quotes : The Nightingale ME Definition
  • Focus on Ten Points on the Education of Children with ME
  • Protecting Children
Mini-Vision 2006-3
Mummies Aren't Supposed To Cry

Mini-Vision (2006-3)

  • New - The Nightingale ME Definition
  • Working Together : MEA and TT
  • NICE Is Anything But Nice
  • Snowy Bears and Seasonal Competitions

Mummies Aren't Supposed To Cry

"Thinking back to those times, I wonder how we got through it, but we did." Articles by family members.

Vision 2006-2
The Brief 2006-2

Vision (2006-2)

  • Vision : Project Update
  • Young Hearts Advocacy Project In schools, surgeries, libraries
  • Tymes Trust/Nisai NVA Up to 2000 free places for over16s
  • The Gibson Inquiry Dr Ian Gibson MP gives his views
  • GP Line - Our Experience Get a special rate through the Trust
  • In The Spotlight Consultant's letter not needed for home education
  • Mythtery of Lyme Disease Explained Lyme scare reassurance
  • Healthy Results Watch our virtual seminar for schools and teachers
  • 20Q Returns Melvin the Brain seeks new home to visit
  • Out and About with Kinnerton He does nick exceedingly good cakes...
  • Sally's Open Day Get a personal invitation for the next one!

The Brief (2006-2)

  • ME and the Enteroviral Link Jane Colby's paper in Journal of Clinical Pathology
  • Facts At Your Fingertips Close Household Contact Risk Factor for CFS; GP Services
  • Focus on School Examinations and ME - Special Assessment Arrangements
  • Opathyitis
Vision 2006-1
The Brief 2006-1

Vision (2006-1)

  • Vision : The Westminster Conference
  • The Gibson Research Inquiry The Trust's oral evidence
  • Insomnia - Don't Lose Sleep Over It Dr Darrel Ho-Yen
  • Special Educational Needs Read our parliamentary evidence in full
  • Teacher Training We run the first online teacher's seminar
  • In The Spotlight Tymes Trustcard evaluation (so what's in your wallet?)
  • Bear Necessities Name the bears!
  • Seb On Holiday Again Super girl lends supercar to superspider
  • All Creatures Great and Small Crossword

The Brief (2006-1)

  • Psychiatrists Still in Denial on Home-Based Education
  • Facts At Your Fingertips Children's medicines not tested; respite care
  • Focus on The Quick Tour
  • The Aha! Factor and the Three Holy Grails
Vision 2005-3
The Brief 2005-3

Vision (2005-3)

  • Vision : Trust Website Chosen for National Archive Trial
  • Lady Elizabeth Anson Queen's cousin hosts Friends' reception
  • Should I Call The Doctor? Your 24-hour GP line
  • Stamina and Examinations Photocopy and give to your school exams officer
  • Volunteers Wanted for Research Funded by the Trust
  • In The Spotlight ME/CFS guidelines for educational psychologists
  • Julia Malin's Colouring Competition Professional illustrator draws for you
  • Seb's Holiday Spider crashes wedding party in Turkey
  • Young Hearts Day 2005 Remembering children with ME

The Brief (2005-3)

  • Evidence to the Parliamentary Select Committee on Special Educational Needs
  • Facts At Your Fingertips National formulary for children; Yellow cards; Disabled students
  • Focus on Care of CFS/ME in Children
  • ME - A Persistent Viral Infection?
Vision 3
The Brief 3

Vision (Autumn 2005)

  • Vision : Campaigning and Lobbying
  • Terry Waite MBE Our new patron
  • What You Think Free over-16 virtual education
  • Recent Research Into Exercise and ME What it means to you
  • Dr Darrel Ho Yen I've lost my sparkle - using energy wisely
  • In The Spotlight Our Needs Our Lives - new report from the Trust
  • The Countess of Mar Campaigning in the House of Lords
  • The Young ME Sufferers Trust Open Day At Westlands Garden and Nursery
  • What Have You Been Doing? Fudge goes to Paris

The Brief (Autumn 2005)

  • New ME/CFS Guidelines for Educational Psychologists
  • Facts At Your Fingertips A persistent viral infection; Antidepressants; Virtual educaton
  • Focus on Young Hearts television interview with Jane Colby
  • 50,000 Youngsters Learning At Home
Vision 2
The Brief 2

Vision (Mar / Apr 2005)

  • Vision : A Progress Report
  • The Countess of Mar and Barbara Windsor MBE Our new patrons
  • Pushing the Boundaries in ME/CFS Jane Colby kills the psychological myth
  • South Australian Government Guidelines for GPs We comment
  • Dr Vance Spence More on our biomedical research project; the first ever in children
  • In The Spotlight What is the ME Alliance, what is it doing and why do we belong?
  • Seb's Treasure Giveaway "Psst. Over 'ere."
  • Things 4 u 2 do Spot the difference and win a prize!
  • Young Hearts The launch, a review, letters, and more poetry

The Brief (Mar / Apr 2005)

  • The RCPCH Guideline Where they listened; where they didn't
  • Facts At Your Fingertips Problems with the 'evidence-based' process and the time-line
  • Focus on Experiences : Whispered Words
  • Doctor Still Knows Best?
Vision 1
The Brief 1

Vision (Nov / Dec 2004)

  • Vision : The Project
  • Terry Waite on Young Hearts Plus your first comments
  • Earl Howe and Shirley Conran OBE Our new patrons
  • News Release We fund the first Biomedical Study of ME in children
  • Dr Vance Spence The Chair of MERGE talks to Jane Colby
  • Do Families Want Care in the Home? We report
  • In The Spotlight The Trust's position on ME clinics
  • Virtual Education Partnership We list the LEAs involved
  • Mr Harley's Brilliant Bears Would you like one?
  • The Principal Research Officer at RCPCH on the forthcoming Paediatricians' Guidelines
  • Things 4 u 2 do Competitions u can still have fun with
  • Motorsport's Chris Dyson sends his encouragement

The Brief (Nov / Dec 2004)

  • Twenty Years On Jane Colby introduces The Brief and summarises 20 years' work
  • Facts At Your Fingertips Education law; NAHT Policy; Standards for Children in Hospital
  • Focus on The Doctor's Guide to ME in Children and Young People
  • Are Injections Safe for Children with ME/CFS?

Tymes

Printed copies of TYMES are no longer available. Issues after Spring 2003 can be downloaded here.

You will need Adobe Acrobat Reader to view these files. It is free, and you can get it here.
Tymes 48

Tymes Issue 48 (Summer 2004) : Succeeding With ME

  • House of Lords Launch of the Tymes Trust / Nisai Education Partnership by Earl Howe
  • Do Families Want Psychiatrists? We investigate
  • Exploring : Anti-Viral Drugs Dr Elizabeth Dowsett
  • Great Ormond Street Study Our opinion
  • In The Spotlight : The Tymes Trust View Check your child's records
  • Simon Selkin's Big Box of Gifts Would you like one?
  • Education Minister Baroness Ashton Thanks Tymes Trust
  • Seeing's Believing Dr Darrel Ho-Yen
  • Young Hearts Poetry appeal
  • A High Speed Hello from three top Le Mans drivers
Tymes 47

Tymes Issue 47 (Spring 2004) : Making It Happen

  • Nisai Press Release Announcing our education partnership
  • The Dave Monk Show Revolutionary ME-friendly education system (BBC interview)
  • Exploring : The Physical Evidence A Newshounds Special
  • In the Spotlight : The Tymes Trust View Should we use the new Canadian diagnositc criteria?
  • The Chair of Trustees' Bear Awards Send for a Beefeater Bear!
  • The Sky's the Limit How Tymes Trust trains teachers
  • Great Treasures Dr Darrel Ho-Yen
  • Shirley Conran's Letter Writing Prizes
  • Caron Keating : A Very Special Hello
Tymes 46

Tymes Issue 46 (Winter 2003) : Seeing Stars

  • Stars with ME Best-selling author Shirley Conran and Speedway ace Gary Frankum
  • An Acknowledgment of the Trust's Work The Rt Hon Charles Kennedy MP
  • Exploring : ME and the Family Jill Curtis on managing family festivities
  • Doctors with ME Dr Anne Macintyre and Dr Charles Shepherd
  • In the Spotlight : The Tymes Trust View How should the new government money be spent?
  • Christmastide Poetry
  • Positive Response Elizabeth gets 40 GCSE marks for educating her school about ME
  • What Makes You Smile?
  • Barbara Windsor : A Christmas Message

TYMESplus : Story of My Christmas by Dr Anne Macintyre

Tymes 45

Tymes Issue 45 (Autumn 2003) : What's the Key?

  • Feature Interview : Dr Lynn Michell Former researcher with Medical Research Council echoes findings of The Forgotten Children
  • Exploring : The Polio Link Are ME and Poliomyelitis related?
  • The GPs Good Practice Guide to Education for Children with ME Lord Clement-Jones CBE launches our new publication
  • Back to School? How the government's guidance for sick children is being interpreted
  • Insight : Friendship Quality is better than quantity
  • What's the Key? Our Focus Group families guide us on what they find helpful
  • In the Spotlight : Decreased Ability to Exercise
  • Derek Acorah : A Friendship Message
Tymes 44

Tymes Issue 44 (Summer 2003) : Tyme for Life

  • Feature Interview : Terry Waite In conversation with Jane Colby on endurance and hope
  • We present our dossier The Forgotten Children to Number 10 Statistics on how families are treated by doctors and schools
  • Exploring : The War on Fear Summary of the 'dossier of shame'
  • Insight : Nature's Power The influence of nature on health
  • Thornton Awards Teacher trained by Tymes Trust wins award
  • Doctors of Philosophy Dr Darrel Ho-Yen and Professor Tony Pinching
  • In the Spotlight : ME in Japan
  • Kenneth Branagh : 'Strength and Courage'
Tymes 43

Issue 43 (Spring 2003) : According to ME

  • Feature Interview : Kerry Ann Edge Showing how and why a young person's health can recover over time
  • Listening to the Children with Toria Bicknell
  • Exploring : The Glass Ceiling Dr Charles Shepherd explores exercise limits
  • Report on the Launch of our Parents' Forum with raisingkids.co.uk
  • Taking the Fear out of Tube Feeding with our tube feeding advisers
  • According to ME : Self-healing by Dr Aloke Agrawal
  • The Educational Dimension by Dr Nigel Hunt
  • James Herbert supports the Tymes Trust
Tymes 42

Issue 42 (Winter 2002) : Ready Steady Pace

  • Feature Interview : medical journalist Jerome Burne Explaining the media's treatment of ME
  • Syndrome or Symptom? Notable doctors and others' views on the name 'CFS'
  • How we studied the Effects of Pacing Showing that Pacing is effective and safe
  • Pacing the Holidays A practical guide on surviving the festive season
  • Cheerful Notes Young people's favourite music and pages to colour
  • Prime Minister's Endorsement of Tymes Trust
Tymes 41

Issue 41 (Autumn 2002) : Heart to Heart

  • Feature Interview : Shirley Conran Her first interview on her ME: "Why I wrote Superwoman"
  • Facing Emotions with Tymes Trust Medical Adviser Dr Darrel Ho-Yen
  • How To Get Good Grades and Protect your Health Special Arrangements
  • A*s in Their Eyes! Practical tips on the exams experience
  • Heart to Heart Young people's feelings and thoughts on having ME
  • A Personal Road to Success One family's experience of computer learning
Tymes 40

Issue 40 (Summer 2002) : Hand in Hand

  • Feature Interview : Lady Elizabeth Anson The Queen's cousin talks of her ME
  • House of Lords presentation of Tymes Trust computers to children with ME
  • How to Accept and Adapt from Zoe's Win by Jane Colby
  • Out and About for Summer Young people share ideas for easy visits or activities
  • Tymes Trust Partner Groups Including news of international links
Tymes 39

Issue 39 (Spring 2002) : Tyme to Report

  • Launch of the government Chief Medical Officer's Working Group Report on CFS/ME
  • How the Chief Medical Officer's Report on CFS/ME affects Education
  • Physios Urged To Go Cautiously Guidance for physiotherapists from Physiotherapy Frontline
  • Rehabilitation or Recuperation? Caution and Common Sense
  • Catch of the Day Evaluation of CBT study in children
  • Where I Live Young people tell us about their circumstances
  • Launch of the Tymes Trustcard Endorsed by the Secondary Heads Association
TYMESplus : Physios Urged To Go Cautiously by Jane Colby

 

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